Sunday, March 26, 2017

hilton head

On Friday....
It was infusion day~~~~~

I have CVID.....
Common Variable Immune Deficiency.

This is one of the most frequently diagnosed primary immunodeficiencies, 
especially in adults.
It is characterized by low levels of serum immunoglobulins and antibodies,
 which cause an increased susceptibility to infection. 
While CVID is thought to be due to genetic defects, 
the exact cause of the disorder is unknown in the majority of cases. 
I was well into my sixth generation before I was diagnosed, which is not uncommon.

The treatment of CVID is a monthly infusion of immunoglobulins 
extracted from a large pool of human plasma.
It consists mostly of IgG
 and contains all of the important antibodies present in the normal population.

Once a month,
a very sweet nurse comes to my home and administers my infusion.
I am very thankful for this procedure...
for far fewer infections and sicknesses.
Needless to say though, it is very taxing on my body
and causes my chronic, treatment resistant depression to flair.
It also makes me extremely tired and lethargic.
Many think that my constant struggle with depression and anxiety
 is directly related to this disorder 
that has been with me since early childhood.

My husband lives with this person (Me) when this happens.
Friday afternoon he asked me....
"You want to go to Hilton Head tomorrow?"
I said, "Yes, I would love to."

First stop was Jim & Nicks for lunch.
{Lou, our table was occupied by five young girls talking away,
and I saw our waiter.}
I didn't order well....grilled catfish,
Bubba tried to warn me, but my appetite is also diminished.
I did get my lemon pie though.

Next stop was Harbor Town.
They are making progress on the repairs to the pier and the yacht basin.
Some of the yachts had returned as you can see in the picture.
Then we drove slowly back down the road closest to the beach and on to Coligny Plaza.
Bubba went to look in the hardware store and I headed for the beach.
Spring Break had all of the crazies out,
but only one or two were actually in the water.💦

God is so good to provide what we need.
A day on the island,
a walk on the beach,
a piece of lemon pie,
a sweet nurse,
an understanding, caring husband,
medicine for the body and soul.

"Your love never quits,
It never runs out,
It never gives up on me.
Your love...."

Friday, March 24, 2017

a pelican

Do you ever think about how creative our God is?
This is a pelican.
Look at that beak.....
perfectly suited for fishing.
Look at his eye....
able to spot his catch and retrieve it in a blink.
Look at his feathers....
He can fly wherever he needs to go.
Look at all the colors God painted him with.

I took this picture at Jupiter Inlet.
A beautiful place where the land meets the ocean.
We have seen so much beauty at this sight.
Eli was by my side taking pictures.
I think he got a shot of this guy too.

"Look at the birds of the air,
that they do not sow, neither do they reap,
 nor gather into barns, 
and yet your heavenly Father feeds them.
Are you not worth  much more than they?"
Matthew 6:26

Wednesday, March 22, 2017

an afternoon at the beach.....

with my Lu.
The temps soared into the eighties yesterday.
Lucy and I stopped by Target to buy a beach chair and headed on down.
The beach was absolutely beautiful.
I sat in my chair and she dug in the sand,
then we walked and walked seeing all of the sights.

Of course the big cargo ships always put on a fabulous show.
There were several fully loaded mammoths 
making their way out into the ocean.
Nothing like seeing them turn the corner and disappear.
I never tire of this sight.

There were thousands of jellyfish
 littering the edge where the sand and water meet.
Lucy tried to rescue some of them by pushing them back into the water,
but I think that was a fruitless pursuit.
When a jellyfish is dead there is no coming back to life.

Lucy made a footprint heart and wrote "I Love Gram" in it.
The big wave from the ship that passed quickly washed it away.
That's what happens on the beach.

We found this piece of driftwood.
Wonder where it came from/ where it has been?

We saw this seagull 
chowing down on a dead jellyfish 
and were kind of grossed out.
That's the way of the sea though.

Beautiful blue sky...not a cloud in sight,
just enough sun to turn our skin pink.
We were lulled by the gentle waves and left feeling
happy and content.

Lu and I stopped by the Crab shack on the way home.
Shrimp and crab legs by the river;
and, oh please, throw in a deviled crab.

"Gram, while you pay, I'm going to say goodbye to the birds,"
(they have a room full of exotic birds on display.)
"Okay Lu, I'll meet you there."
What a wonderful day.

Tuesday, March 21, 2017

the big beautiful blue.....

 Atlantic, Ocean.
It never fails to make my heart go flutter.
The vastness of the ocean always reminds me of
how much God loves us.

Tonight I am thankful for my husband who
continually points me to the cross of our Savior Jesus Christ.

Sunday, March 19, 2017

eli's acrostic

Greatest storyteller I've heard
Really great at making me laugh
Awesome friend to everyone
My hugs are found here
My favorite person to shop with
Yelling is not her thing

Great big lovable giant
Really good at grabbing me (the grabnabber)
An awesome driver
Never yells
Does not hurt anyone
Always happy
Does everything to help people
Dislikes no one
Yes is the answer to almost everything

Well there you go...
through the eyes of our grandson,
very special words.

Here is one for you
Everything we could ever ask for in a grandson
Interesting to talk to

Thank you sweet boy for all that you are...
for all that you will be In Christ Jesus our Lord and Savior.

Saturday, March 18, 2017

grandparent's day...

Jupiter Christian School.

Just back, again, from south Florida.
This time we celebrated Eli's tenth birthday
and were honored at Grandparent's Day.
Grades K-3 through Fourth Grade sang for an hour.
They sang their little hearts out.
They sang praise and worship songs.
It was so good and so honoring to God.
I cried with joy.
We were truly blessed.
Eli and a friend sang together at the microphone.
We were so proud of him and all of the children.

Eli was so excited to get his "suit."
That would be the sharp, navy blue blazer he is wearing.
He insisted on the red tie....
"No bow tie please," he said.

In his classroom, still in his "suit,"
he was seated at his desk waiting for me 
with that red rose I am holding and his book of poetry,
 which I brought home to enjoy.

I will say this....
whether it is watching Eli sing,
or kissing them goodnight,
or giggling in the back seat with them while driving to dinner,
or eating ice cream at the Dairy Queen,
it is an honor and a privilege to be a grandparent to these boys.
They are truly God's blessings for us in our "older" age.

Sunday, March 12, 2017


When they were very little, 
and I was younger, 
and the sun was setting.

Oh be still my heart...
you have so many blessings.